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A study af 64 doctors reported that distal spread of RRP has occurred in 94 (13%) of their 700 patients. Half of the practices surveyed had experienced a death from RRP.

I didn’t know it was this bad.  And with Ayrie getting worse, this is all I can think about.  I now understand why serious illness destroys families and relationships.  We still have options.  Not good ones, but at least options.  And yet this is all I can think about.  There is an overwhelming saddness and worry just under the surface no matter what I am doing.  So when people talk to me about meaningless things, and I respond, I am only 25% engaged.  I am acting.  And in the back of my head I am thinking, how can they care about this when Ayrie’s body is trying to kill him from the inside?