travel funds…only helpful for those predictable diseases?
For those of you who are new to this website, my son has JORRP, which you can read about here, and you can read more about his story here. Ayrie’s breathing is deteriorating.  I don’t know if it’s regrowth of the papillomas blocking his airway or a side-effect of the medicine he takes.  I don’t want to goto the local hospital where they know nothing about this disease and have them admit ayrie, run a lot of tests that don’t give them the right information and then force me to sign him…read more